This page was written shortly after I found out I was living with an incurable disease. Since then, I have done much to change my eating habits and way of life. I want to share what has helped me most as far as feeling better.
#1. Eat right... find out which foods create the fewest problems for kidneys. For the most part, the more vegetables the better. Grow your own if you can, or choose organic at the store.
#2. Drink right ... Real cranberry juice (not the sugared kind) should be part of your diet. Urinary tract infections are frequently a problem for us, and I've never had one. I suspect it's because I have long included real cranberry juice in my diet.
#3. Move around. Take a walk. Walk on a treadmill. Ride a bike. Dance to your favorite music. I feel better when I have made the time to work up a sweat during the day.
#4. Stay up on the PKD and CKD advancements. I don't totally trust doctors, and especially when it comes to a disease they seem to know little about. I don't always trust foundations who are looking to "find a cure" by it's readers raising money either. But there is good information to be had on such sites. At the very least, you will feel less alone in your diagnosis. (This is my opinion only. You make up your own mind.)
I do not go to a doctor and have no idea how my disease is progressing. I know that is not the case with most people, but I have no insurance and can't afford to go. Plus, I am able to do much for myself without someone telling me what to do. I monitor my own BP, which according to my own doctor years ago, is the one thing that matters most.
I have a large waistline and it won't get smaller, only bigger. I feel heavy and full always. But I have no headaches, and not much pain (or maybe I've become accustomed to it) and I'm able to do everything I've always done, except I have less stamina than I used to.
BEGIN TREATING YOUR KIDNEYS RIGHT TODAY!