"Jo!"
I'm out in the street, so it's a wonder that I heard my name being called at all. But there's a lull in the traffic and I'm away from the main pedestrian hubs.
The urgency in the tone alerts me to the fact that this probably isn't the first time that she's called me. There's psychological pressure on me to find her fast. I don't want to appear impolite.
Single-sided deafness means that I have no direction of sound, but I do have eyes. I quickly scan the road ahead of me to no avail. Then I turn around, looking until I spot the source. It's my friend and she's waving from the doorstep of her house. "Finally, you deaf cow! Come and have a cuppa. I've got news!"
I wander across the road, taking care to look for traffic. I can hear vehicles, but have no way of knowing if they're approaching or moving away. The only way to gauge their distance is to see them.
Once through the front door, I'm engulfed in a cacophony of noise. There's no depth to it, just a flat wall of sound seeming all to derive from my left side. (I'm deaf in my right ear.) The television is on. A soap opera blares out a constant stream of words, which clash and merge with those spoken by the other two people in the room.
My friend has possibly said something. I don't know. She's gestured towards the settee and that subconscious bit of body language has provided me with a clue. I'm being invited to sit down, while she disappears into the kitchen. This is a British home. She will be making a cup of tea to demonstrate how welcome I am in her home.
I feel disorientated, because it's hard to think with that white noise distracting me. My instinct is to switch the television off and yell at everyone to shut up. But etiquette demands the opposite reaction.
I'm to be on red alert. I'm to watch every person present, in case their attention or moving lips indicates that they have spoken. Unfortunately, that focus often prompts people into conversation. I'm now lip-reading and watching their non-verbal communication.
All the time, the noise feels like something physical to be warded away. It comes and goes. Just one source of sound is fine. I can hear it. As soon as there are two, it's like I've been slapped. The television and conversation over the top is the most common situation in which I have to suffer this.
Her husband has a beard and mustache. I cannot see his lips moving, though his gaze and the laughter of his teenage son tell me that I'm ignoring him. I feel like a stuck record, repeating this every time I'm here, but out it comes again, "I'm sorry. I'm deaf in one ear. What did you say?"
Whatever the response was, it must have been funny. It was probably a light-hearted joke about deafness. People are full of those. It breaks the tension, which so many seem to feel at the prospect of silence. He reaches forward for the remote control and I catch his broad smile. He wants to be helpful. He switches on the subtitles, so I can watch the television too.
And the noise goes on. Too much of it and I feel silently dizzy. I'm getting a headache from having to concentrate so hard. I start sentences with an apology, because I missed the thread of the conversation. It's not just the volume. It's not just the sound. It's the sheer scale of it all, like an assault, when they're all trying to be so welcoming.
Comments
Having normal hearing, and waking up ssd at 25, was overwhelming at first. It was a medical issue that zapped my hearing and sight on one side.I noticed vision loss, before I realized deafness. Adjusting to ssd was more frustrating, than the vision loss. I became timid and frightened easily. The full effects of ssd was an adventure in lifes lessons to say the least . Once I learned to accept it, it became easier to adapt and retrained my thought process. I quickly found myself being able to read lips. I learned situations to avoid, and what to do in unavoidable situations (safety). After 15 years of ssd, I was gifted my first set of hearing aids, in which I would I never of been able to afford. I cried just being able to hear my children play and laugh...run through the house and hear their foot steps, then to hear the birds sing, and the leaves rustle as I walked in the yard. All great sounds I missed so much. But soon it all became overwhelming. The adjustment back to hearing world I thought I so dearly missed, was causing me anxiety. I enjoy wearing them, and I enjoying not wearing them. I quickly learned having ssd I didn't fit into the deaf community, or the hearing community. Which put me in a world of my own. The people closest to me don't make it an issue. They just know to sit across or to the left of me. I am more aware of my surroundings. Particularly for safety reasons, which is huge now days. If someone approaches and tries to speak to me, Ishuffle myself around to hear them. A time or twenty I have been known to say "can you repeat that in my other good ear"..lol. Many people think they need to shout 4 inches from your face, they assume your deaf and dumb, or they talk so dang slow they forget what they were saying. So I just try to avoid the annoyance of explaining it to strangers. I've been given an opportunity, an ability to tune into hearing every little annoying sound, or tune out the world, all depending on what I chose to do. That is best thing about ssd.
Jo high-fives Bill
Bill high-fives Jo
Bill speaks for me too in so much of this. I too have learned that those who don't want to include me don't deserve me attempting to include myself. They're really not worth it.
The exception being friends who ordinarily know damn well what's going on here, but are too tired/drunk/forgetful to have it registered at that moment in time. Then I just disappear into my own world, or grin at them until they remember. Getting control of the remote and pausing the TV every time they attempt to speak over it soon alerts them to their behavior.
Tom, you have hit the nail on the head there. The quiet ones on the outskirts are usually the more interesting people anyway. I hope you find your confidence to go with that wonderful compassion. It'll open up a lot of social situations for you. Then there's always online communities, where typing all responses means no need to hear a thing. You sound to me like a beautiful person and folk deserve to hear more from you.
Yes, I do get a lot of back-ache and neck cramps from turning around. But then I sit ordinarily like someone with no sense of decorum or posture, so I only have myself to blame. ;)
Thanks Bill, I notice that in some situations I am carrying the conversation and in others it is just to hard for me to keep up with. I know that my hearing loss in one ear has changed my personality and it has made me a completely different person in some situations. I think that this has made me think differently about life and has made realize not to judge others so harshly. I have found myself being more of an outkast talking to people that I probably wouldn't have met if I had not had hearing loss. I find myself trying to talk to people who are not part of a big group of people and don't have much friends because I know that I can have a conversation with them with no other voices and I know what it's like to be them. Having a hearing loss has made me realize what it's like to be left out so I find myself relating to other people who don't have many friends because of other issues other than hearing loss. I am thankful that I have had the opportunity to feel what it's like to be left out. This has made me stronger and has made me be a person that I am proud of. I hope that others will learn to respect everyone no matter what because it is impossible to know what people are going through.
You're welcome Tom. I think that your friends will be accommodating. Be patient. Remember they really don't know what we experience. They will probably need reminding from time-to-time.
I think that the most difficult thing for non-deaf people to comprehend is that we swing back and forth between the deaf world and the hearing world. They barely notice a little bit of background noise. It puts us in the deaf world. At times we can hear just as well as they do. From their experience it is incomprehensible that that changes. I found that after telling my friends on multiple occasions that I was having difficulty hearing, they began to recognize the noise environments that cause that to happen. Its important to let them know that because we do not have stereo hearing we cannot focus on sounds and block out background noise.
Don't be embarrassed, there is nothing wrong with you. We just hear in a different way than others do.
Thanks for the advice Bill, I really appreciate it and I will educate my friends about what I am dealing with.
I don't have a problem being SSD. I let people know that I'm deaf in my left ear. It doesn't take a lot to accommodate me. If they can't make the effort, why should I be embarrassed? They are obviously shallow people whom I wouldn't want to associate with anyway. I am a far better and interesting person than they are.
Most people are understanding. You need to make the effort to educate them. They cannot be expected to just know what we experience. Give them a chance. I find that people are often very interested.
I know its difficult when you are younger without the knowledge of how to deal with being half deaf. From experience, I think most of us learn how to deal with it very well. Its something to be proud of.
Hopefully you will be cured! But it is always good to let people know about your problem. When I was suffering some mild hearing loss [now cured] some years ago I was open with my school students about it, and explained that sometimes I might not hear them as well as I could. I found that almost every student was co-operative and sympathetic, as most people will be with you.
Being SSD sucks. Missing out on numerous conversations can have a serious impact on relationships and making friends. People assume you're just quiet and boring. Having to constantly position yourself to hear better is very tiring. If I am ever stuck in a position where I feel like I can't contribute to the conversation, I get really embarassed. This has made me shy away from going to parties or out with friends. I know it doesn't seem that tough to deal with, but the reality is that it has made my life very hard.
I used to get anxiety in the classroom because I couldn't hear my self breathe and I would get paranoid about if people thought I would breath loud or if they could hear my stomach growl which it constantly would throughout every class. I know that seems funny but it really did impact my school work. I also have problems with my spine and I walk strangely because of this. I think that this is related to how I sat in the classroom because of having to position my body to hear better. Or could it be related to a problem with my vestibular system? If anyone else has dealt with these issues let me know.
Overall being deaf in one ear has made me very depressed at times but I know that someday I will eventually be able to hear in both ears thanks to advances in technology.