After two years of strange behavior, even weirder symptoms, and many misdiagnoses, my mother was finally diagnosed with both CBD and PSP.
I had never known anyone who suffered from these diseases, and I really couldn't find a whole lot of information online. The basic information I was able to find was just that, basic.
I did learn that both progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) are rare. PSP affects about 6 out of every 100,000 people, and only about 3,000 people have CBD in the US. Somehow, as rare as lightening striking twice in the same spot, my mother is afflicted with both.
I wanted to write something to share my mother's story about these diseases since I really couldn't find out much at the beginning. I want to give those who care for loved ones a place to hopefully find answers to some of the same questions I had.
These rare disorders are deadly, but nearly unknown by the general public. Unless lightening strikes in your life, you'll probably never hear about either disease. It's time to change that. It's time to find a cure.
*I am not a medical doctor. This article is not meant to make a diagnosis. It is written to tell my mother's story and what I've learned through my own research. Please talk to your physician about any concerns you may have about PSP or CBD